EPS 33 MECCA'S FACE IS DISTINGUISHINGLY MIDDLE EASTERN?!! CDLS

650,843 views

Oki Setiana Dewi

Published on Feb 21, 2024
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#Nicu Warriors They are unique and they are great For friends who want to share with our younger siblings in need, please contact the contact below: Account No. = *1341929798*BCA an Mohammad Dea Idris Ig Account = @NATHASYAKILLAH / nathasyakillah Phone No. = 082119664552/ 082120711992 Child's name: Mahreen Mecca Idris Parents' names: Mohammad Dea Idris and Natha Syakillah Needs For: 1. Buy INFATRINI / NUTREN JUNIOR milk, because 1 week needs 3 cans of 400 grams and each can costs around 350 thousand.. 2. Replace the NGT tube for drinking milk, replaced once a week and the cost of one replacement is 300 thousand.. 3. Need money for transportation to RSCM Jakarta 1 month 2x, because our child can only get treatment, check-ups and check-ups at RSCM. Because the hospital in our area does not have adequate equipment and does not support its doctors. 4. for therapy costs Speech therapy 300 thousand per visit Occupational therapy 250 thousand per visit. Physiotherapy therapy 300 thousand per visit This is done 3 times a week The total is 10,800,000 thousand rupiahs For more information about CDLS, please contact: Instagram account @CDLS INDONESIA #CDLS (Cornelia de Lange syndrome) is: Cornelia de Lange syndrome (CdLS) is a rare genetic disorder that occurs at birth, but cannot always be detected while still in the womb. This syndrome causes several physical, cognitive and medical disorders. Thank you for watching, don't forget! Comment, share, and subscribe !!! Friends, what other videos do you want to request? comment below everyone ❤️ Don't forget to follow too: / okisetianadewi / okisetianadewiofficial / aboutoshicis CP: ???????? +628118213001 Email: [email protected] #NICUwarriors #syndrome #angelmansyndrome #motivation #nicujourney #rare disorders #special needs children

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