What if your child's cure cost 16 million?

274,768 views

AMAR por Mariana Kupfer

Published on Jan 9, 2020
About :

Daniela (@ameemdobro) always dreamed of being a mother of twins. In 2018, her wish came true and Maitê and Lorena were born. At 9 months old, they were diagnosed with a degenerative genetic disease, SMA. Spinal muscular atrophy is a disease that affects one in every 10,000 newborns. Without functioning neurons, the muscles gradually atrophy and lose strength. Daniela is looking for a new treatment that can CURE her daughters with just one dose. However, this medicine costs around R$8 million, and in their case, it costs double! Treatment must begin before they are 2 years old, and the family is in a race against time. Learn the story of this mother who fights for her daughters' quality of life and learn how to help. Production: @chadas5produtora Look: @leirislifestyle and @perte_accessori Hair and Make: @wellmakeup_ Below is the Vakinha website. We count on everyone's collaboration: https://www.vakinha.com.br/vaquinha/a... Follow Mari on Instagram: www.instagram.com/marianakupfer Who has already bought the book? Run to guarantee yours! The link is below, RUN: http://bit.ly/2VrEbLs Follow us on social media: instagram.com/amarmaternidade facebook.com/amarmaternidade

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