The story of a boy with Niemann-Pick disease type B

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Sanofi Russia

Published on Oct 7, 2024
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How to live with a "rare diagnosis" - Niemann-Pick disease type B? Arseniy was accurately diagnosed at the age of 2.5 years, now he is 16 and has big plans for adulthood. His family, environment and peers support him in many endeavors, he does not focus on limitations, but looks for all available opportunities. Arseniy himself, his mother - Marina and father - Artem talk about the difficulties of diagnosis and its acceptance. MAT-RU-2402297-1.0-07/2024

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