Rare Pompe disease - Przemysław Burmer - Talking Dreads - Conversation #9

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Gadające Dready

Published on Mar 11, 2024
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Facebook: https://bit.ly/348wsXf Instagram: https://bit.ly/30MAD9g TikTok: https://bit.ly/3MnHGgn Przemek's links: Facebook: / fundacjarerediseasesuniqius Information about Pompe disease: https://www.uniqius.org/category/chor... Information about World Rare Disease Day: https://www.uniqius.org/aktualnosci/2... Donate 1.5% to the foundation: https://www.uniqius.org/aktualnosci/p... The ninth conversation in the series on the channel. The guest is Przemysław Burmer. What are rare diseases? What does Pompe disease have to do with hamsters? How does a genetic disease change life? I invite you to almost 2 hours of our conversation. Contact: [email protected] Place of recording: Studio ViBrand https://www.vibrand.pl Episode registration: Łukasz Goździuk (ViBrand), Michał Matusiak 8. How to be a MUSLIM in Poland - Joanna Trochimowicz • How to be a MUSLIM in Poland - Joanna ... 7. Karolina Bachnik =Staszek Fistaszek's mom - DOWN SYNDROME • Staszek-Fistaszek's mom - DOWN SYNDROME... 6. Karol Bielski - What is OdwrotonaLekcja? • Karol Bielski - What is OdwrotonaLe... 5. Adam 'Luta' Tersa - Why not Ras anymore? • Adam 'Luta' Tersa - Why not anymore ... 4. Tomasz Lesicki - Musth - HOW I BECAME A BARBER • Musth - Tomasz Lesicki - HOW I BECAME... 3. Monika HeyMonia Żukowicz - THE FIRST POLISH LADY OF POKER • HeyMonia - THE FIRST POLISH LADY OF POKER... 2. Justyna Dalecka (Be Loved Daily) - Life from Instagram • Justyna (Be Loved Daily) - Life with In... 1. Piotr Edzio Bylina is getting married... Just don't tell anyone • Edzio is getting married... Just don't tell anyone... photo for the thumbnail: JacqRoosFotografie #disease #pompego #genetics

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