My life with Cystic Fibrosis - Paz Bononato Fernández - World Latest Movie, Series, Videos and Trailers | fetery.com

My life with Cystic Fibrosis

110,167 views

Paz Bononato Fernández

Published on Feb 8, 2017

About :

Hello salty ones! Last week we saw Cris's experience. Today I bring you my experience with Cystic Fibrosis. I hope you like it a lot :) PS: Ignore the fever on my lip that I couldn't hide even with lipstick! When was it detected and how? 00:38 What was it like for my parents? 1:25 My treatments as a child 2:40 And then Psudomonas arrived! 4:50 How has my lung function evolved? 6:28 Pancreas 6:48 Disability 8:40 Studying and working with CF 9:00 Kalydeco 12:20 Friends and partners 14:50 What do I do now? 16:30 You can follow me on: Instagram: @bonolala Facebook: Bonolalafq Blog: www.bonolala.com Email: [email protected] Information: Andalusian Cystic Fibrosis Association: http://fqandalucia.org/ Spanish Cystic Fibrosis Federation: http://www.fibrosisquistica.org/ Camera: Canon G7X Editor: Adobe Premiere

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