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Today on @amarmaternidade we talked to Stefani (@maededuas_bonecas), who is the mother of twins Rebeca and Manuela. When Rebeca was born, she needed to be resuscitated and intubated. When she was only 10 days old, she underwent her first surgery and was initially diagnosed with Hirschsprung's Disease and Short Bowel Syndrome. After several tests, the doctors arrived at a new diagnosis: Ondine Syndrome. After a lot of struggle, unfortunately little Rebeca passed away at the age of 2. Stefani told us the details of everything she experienced with her daughter. Look: @nkstore Makeup and hair: @bifalletti Production: @tencyproducoes Social Media: @beesocial.br Follow Mari on Instagram: www.instagram.com/marianakupfer Have you already bought the book? Hurry up and get yours! The link is below, HURRY: http://bit.ly/2VrEbLs Follow us on social media: instagram.com/amarmaternidade facebook.com/amarmaternidade photos: