Living with Williams Syndrome - A Mom Interviews Life with a Child with a Rare Genetic Disorder

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Published on Mar 20, 2019
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Living with Williams Syndrome - Interview with a mother about the life of a child with a rare genetic disease Help the fund: https://williams-syndrome.ru/donate?u... Adguru is 19 years old, they live in Abkhazia and he has a rare disease - Williams syndrome. In this video, you will learn about how to live in a small country alone with such a rare genetic diagnosis, how to accept the diagnosis of Williams Campbell syndrome in children, build relationships with loved ones and look forward with optimism... ___________ The Williams Syndrome Support Fund is the only fund in Russia for a community of families with children with Williams syndrome who have united because it is easier to overcome difficulties and enjoy life together. About the Foundation https://clck.ru/34Tghr We help https://clck.ru/34TgjJ Help the Foundation https://clck.ru/34Tgj5 0:00 Introduction 0:10 How the diagnosis was made 1:35 Developmental delay 3:19 Search for information and similar people 4:20 Adgur does not consider himself special 4:45 Features 5:39 About Adgur's character 6:12 Attitude to Adgur 7:09 Bad incident at work 8:17 Problem with friends 8:53 Volunteering 9:25 It's Adgur's birthday 9:55 Dream 11:17 Wishes for people 11:50 The most important thing is MOM __________ Watch other videos on our channel: • Living with Williams syndrome - Interview... • Lysosomal acid lipase deficiency - Living... Subscribe, like, comment and tell your friends =) / @RarePeople #rarepeople #williamssyndrome

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