Living with Bechterew's Disease My Story

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Bechterew's disease Ankylosing spondylitis

Published on Premiered Oct 31, 2024
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Introducing a new format for our channel — an interview we call “The Spark of Hartamann.” In this episode, Yuri, a person with Bechterew’s disease, shares his story and the inspiration he found in the candid film by Oscar Hartamann, who also lives with this diagnosis. Oscar’s story lit a spark of hope in Yuri and gave him the strength to move on, despite all the difficulties. Yuri is interviewed by a specialist from our Interregional Public Charitable Organization for the Disabled “Society for Mutual Assistance in Bechterew’s Disease and Other Rheumatic Diseases,” Anatoly Demidenko — a social worker, psychologist, and a person with Bechterew’s disease who, like Yuri, has gone through trials and tribulations and now helps others. This dialogue, full of understanding and sincerity, can become as important a reference point for you or your loved ones as Oscar’s film was for Yuri. Support our initiative: share this video, help spread information about life with Bechterew’s disease. Make a donation so that we can continue to support and inspire those who need our help: https://bbehtereva.ru/about/donations/ _____________________________________________ Our organization's resources: ???? Peer Counseling Service (peer counseling is a full-fledged social service provided by a peer consultant to a client - a person with a diagnosis, to support and inform in order to navigate a difficult life situation. The service is provided free of charge, confidentially and anonymously): https://bbehtereva.ru/ravnye/ ???? Literate Patient (booklets and brochures on basic issues from receiving medication and disability to exercise therapy and family planning): https://bbehtereva.ru/patients/docume... ???? Self-diagnosis (test for inflammatory pain, Basdai, Basfi): https://bbehtereva.ru/patients/self-d... ???? Playlist on planning and pregnancy on YouTube: • Pregnancy and childbirth with bol... ????Playlist with exercises on YouTube: • Therapeutic physical training for every day/year... ????The Society's team and heads of regional branches: https://bbehtereva.ru/about/team/ ????Social networks of the Society (we do not maintain them, which have been banned in the Russian Federation since the ban): https://vk.com/bolezn_behtereva https://t.me/BBehterevaRU https://m.youtube.com/user/boleznbekh... https://m.ok.ru/group/51023129215168?... ????Seniprutug answers to questions: https://bbehtereva.ru/news/863/ ????Broadcast with academician Lukyanov: https://www.youtube.com/live/LNrVbZZn... ????Recording of the All-Russian forum for people with rheumatic diseases "Life with arthritis: the path to support and knowledge" : https://vk.com/video-33877986_456240289 #ThePowerofHistory #Bechterev'sChronicles #RheumaticDiseases #PatientSupport #DiseaseNotASentence #Rheumatology #CareAndSupport #StrongInSpirit #LifeWithDiagnosis #HelpForDisabledPeople #IskraHartamann #LifeWithBechterev'sDisease #SupportForRheumatirists #MutualAid #OskarHartamann #LiveWithHope #SocialSupport #InvisiblePain #Bechterev'sDisease #ankylosingSpondylitis

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