[Conflict between daughter and parents] A day in the life of a daughter with Cornelia de Lange syndr - 964万7千分の一 - World Latest Movie, Series, Videos and Trailers | fetery.com

[Conflict between daughter and parents] A day in the life of a daughter with Cornelia de Lange syndr

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964万7千分の一

Published on May 30, 2024

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[Conflict between daughter and parent] A day in the life of a daughter with Cornelia de Lange syndrome who suffers from insomnia and her parents who devote everything to her love Supported by Nitan Clinic There are 9,647,000 people with disabilities in Japan (Cabinet Office official website, 2022). Nearly 10% of the population lives their daily lives with some kind of disability. As the aging population continues to progress and pediatric medicine develops dramatically in the future, I think this number will continue to increase. I don't think that "disability" is something that "someone else" has. You and your family will eventually become "disabled" in some way. A "coexistence society" is not something that is realized only for people with disabilities, but something that literally moves forward so that everyone can live comfortably. Konoha has Cornelia de Lange syndrome. Cornelia de Lange syndrome is said to be a mutation in the genetic information on chromosome 5. It is characterized by hypertrichosis, missing limbs, deformities, and hearing loss. During pregnancy, her father and mother were told that her baby's heart was in a different position, and that she had a congenital diaphragmatic hernia, so they were left feeling anxious as they waited for the day of delivery. Konoha is now 20 years old and has undergone a flurry of surgeries since she was born. Konoha has a sleep disorder and now lives an "unstable" life. We followed Konoha, her father, and her mother in a day in her life. Please take a look. Sponsored by - Nitan Clinic Xcom Global Co., Ltd. https://www.xcomglobal.co.jp/ Konoha Love Channel (Konoha) / @konolove1023 Konolove5 / konolove5 Japan Barrier Free Project General Incorporated Association https://www.barrierfreeproject.com/ JapanBarrierFreeProject original design goods https://suzuri.jp/JapanBarrierFreePro... Japan Barrier Free Project Instagram / bengtyamada #NitanClinic #JapanBarrierFreeProject #JapanBarrierFreeProject #1 in 9,647,000 #CoexistenceSociety #Disability #Disability #Cornelia de Lange Syndrome #Konoha Love Channel #Disability #BarrierFree #Chromosome 5 #Hypertrichosis #Morphology #HearingLoss Secondary use of the images, videos, audio, etc. on this site, such as duplication, diversion, sale, or use, is strictly prohibited. The copyright and portrait rights of the video are owned by Body and Brain Ltd. #

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