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A boy with a rare disease called "Cocayne Syndrome" that causes aging at a young age has o

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Published on Apr 20, 2024

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I met Suchi Homare 10 years ago (aged 6 at the time), who suffers from Cockayne Syndrome, a condition that ages 4 to 5 times faster than normal. The average life expectancy is 15 to 20 years, and it is said that one in 500,000 people develop the disease. Because it is a rare and incurable disease, research into treatment methods has not progressed. As he loses many things, such as his physical strength and eyesight, his only hope is the words of his doctor, "Memories become the strength to live." The family plans a trip to create "happy memories." Surrounded by deep love, Homare lived out his 16 years of life. Narrator: Suzuki Kanato (KHB announcer) Production: Tohoku Broadcasting #CocayneSyndrome #IncurableDisease #SuchiHomare [Teledocumentary] A documentary program jointly produced by 24 companies nationwide affiliated with TV Asahi. Each station takes turns producing the program each week, and produces it from their own unique perspective. *Broadcast times vary by region. Please see the website for details. https://www.tv-asahi.co.jp/telementary

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